Thursday, February 12, 2009

article: Infertility Etiquette

Most of you know us well, and probably know other couples struggling with infertility. I thought I'd take a moment and share this article with you. I found it on a blog of a friends friend. I think it is a great resource for understanding one another.

I've taken my favorite parts and posted them, but if you'd like to read the whole article click on the title of the post.

Infertility Etiquette
by Vita Alligood as posted on RESOLVE: The National Infertility Association


Chances are, you know someone who is struggling with infertility. More than five million people of childbearing age in the United States experience infertility. Yet, as a society, we are woefully uninformed about how to best provide emotional support for our loved ones during this painful time.

Infertility is, indeed, a very painful struggle. The pain is similar to the grief over losing a loved one, but it is unique because it is a recurring grief. When a loved one dies, he isn't coming back. There is no hope that he will come back from the dead. You must work through the stages of grief, accept that you will never see this person again, and move on with your life.

The grief of infertility is not so cut and dry. Infertile people grieve the loss of the baby that they may never know. They grieve the loss of that baby who would have had mommy's nose and daddy's eyes. But, each month, there is the hope that maybe that baby will be conceived after all. No matter how hard they try to prepare themselves for bad news, they still hope that this month will be different. Then, the bad news comes again, and the grief washes over the infertile couple anew. This process happens month after month, year after year. It is like having a deep cut that keeps getting opened right when it starts to heal.

(This one was hard for me to grasp. As someone who has grieved for the loss of a loved one I was surprised that the pain of infertility can be just as poignant. I've felt guilty that infertility cut just as deep, as if it was a lesser trial then the loss of my bother. As a member of the Church of Jesus Christ of Latter Day Saints I find that dealing with infertility (for me) is, in someways, harder. The promises of the Gospel bring comfort to a grieving family dealing with death. When dealing with infertility you have to reconcile promises of the Gospel with unmet expectations. E)


Don't Tell Them to Relax

Everyone knows someone who had trouble conceiving but then finally became pregnant once she "relaxed." Couples who are able to conceive after a few months of "relaxing" are not infertile. By definition, a couple is not diagnosed as "infertile" until they have tried unsuccessfully to become pregnant for a full year.

Comments such as "just relax" or "try going on a cruise" create even more stress for the infertile couple, particularly the woman. The woman feels like she is doing something wrong when, in fact, there is a good chance that there is a physical problem preventing her from becoming pregnant.


Don't Minimize the Problem


Failure to conceive a baby is a very painful journey. Infertile couples are surrounded by families with children. These couples watch their friends give birth to two or three children, and they watch those children grow while the couple goes home to the silence of an empty house. These couples see all of the joy that a child brings into someone's life, and they feel the emptiness of not being able to experience the same joy.


Comments like, "Just enjoy being able to sleep late . . . .travel . . etc.," do not offer comfort. Instead, these comments make infertile people feel like you are minimizing their pain. You wouldn't tell somebody whose parent just died to be thankful that he no longer has to buy Father's Day or Mother's Day cards. Losing that one obligation doesn't even begin to compensate for the incredible loss of losing a parent. In the same vein, being able to sleep late or travel does not provide comfort to somebody who desperately wants a child.


Don't Say There Are Worse Things That Could Happen

Along the same lines, don't tell your friend that there are worse things that she could be going through. Who is the final authority on what is the "worst" thing that could happen to someone?

Different people react to different life experiences in different ways. To someone who has trained his whole life for the Olympics, the "worst" thing might be experiencing an injury the week before the event. And, to a woman whose sole goal in life has been to love and nurture a child, infertility may indeed be the "worst" thing that could happen.


People wouldn't dream of telling someone whose parent just died, "It could be worse: both of your parents could be dead." Such a comment would be considered cruel rather than comforting. In the same vein, don't tell your friend that she could be going through worse things than infertility.


Don't Say They Aren't Meant to Be Parents

One of the cruelest things anyone ever said to me is, "Maybe God doesn't intend for you to be a mother." How incredibly insensitive to imply that I would be such a bad mother that God felt the need to divinely sterilize me. If God were in the business of divinely sterilizing women, don't you think he would prevent the pregnancies that end in abortions? Or wouldn't he sterilize the women who wind up neglecting and abusing their children? Even if you aren't religious, the "maybe it's not meant to be" comments are not comforting. Infertility is a medical condition, not a punishment from God or Mother Nature.


Don't Ask Why They Aren't Trying IVF


Don't Treat Them Like They Are Ignorant


(This one is hardest for me. Be wise when you talk to someone about your experiences as a mother. Please, never make a woman feel stupid because she doesn't have children of her own. E)

For some reason, some people seem to think that infertility causes a person to become unrealistic about the responsibilities of parenthood. I don't follow the logic, but several people told me that I wouldn't ache for a baby so much if I appreciated how much responsibility was involved in parenting.

Let's face it-no one can fully appreciate the responsibilities involved in parenting until they are, themselves, parents. That is true whether you successfully conceived after one month or after 10 years. The length of time you spend waiting for that baby does not factor in to your appreciation of responsibility. If anything, people who have been trying to become pregnant longer have had more time to think about those responsibilities. They have also probably been around lots of babies as their friends started their families.

Perhaps part of what fuels this perception is that infertile couples have a longer time to "dream" about what being a parent will be like. Like every other couple, we have our fantasies-my child will sleep through the night, would never have a tantrum in public, and will always eat his vegetables. Let us have our fantasies. Those fantasies are some of the few parent-to-be perks that we have-let us have them. You can give us your knowing looks when we discover the truth later.


Let Them Know That You Care

The best thing you can do is let your infertile friends know that you care. Send them cards. Let them cry on your shoulder. If they are religious, let them know you are praying for them. Offer the same support you would offer a friend who has lost a loved one. Just knowing they can count on you to be there for them lightens the load and lets them know that they aren't going through this alone.

Remember Them on Mother's Day

With all of the activity on Mother's Day, people tend to forget about women who cannot become mothers. Mother's Day is an incredibly painful time for infertile women. You cannot get away from it-There are ads on the TV, posters at the stores, church sermons devoted to celebrating motherhood, and all of the plans for celebrating with your own mother and mother-in-law.

Mother's Day is an important celebration and one that I relish now that I am a mother. However, it was very painful while I was waiting for my baby. Remember your infertile friends on Mother's Day, and send them a card to let them know you are thinking of them. They will appreciate knowing that you haven't "forgotten" them.

Support Their Decision to Stop Treatments

No couple can endure infertility treatments forever. At some point, they will stop. This is an agonizing decision to make, and it involves even more grief. Even if the couple chooses to adopt a baby, they must still first grieve the loss of that baby who would have had mommy's nose and daddy's eyes.

Once the couple has made the decision to stop treatments, support their decision. Don't encourage them to try again, and don't discourage them from adopting, if that is their choice. Once the couple has reached resolution (whether to live without children, adopt a child, or become foster parents), they can finally put that chapter of their lives behind them. Don't try to open that chapter again.

5 comments:

Blair and Leslie said...

Thank you for posting this. I never thought about comparing infertility to greiving for someone who has died. That is a good comparison. The part the hit me the most was about Mother's Day. That has been the hardest day for me. I hate Mother's Day! I want to celebrate the fact that my sister-in-laws are mother's, but I have a hard time being happy for them when I hurt so much. I would love to hear how you handle this. Even after 3 years of this, I still am not quite sure what to do and how to act because I don't want to show anyone that I am in pain. If you have any suggestions for me you can email me at blstarkey@live.com
I know that I am just rambling, but I just want you to know that I am sorry that you have to go through this. I would never wish this on anyone, especially you. I think having to go through this trial has made me more understanding and less judging of others.

Jacob said...

Yeah, people have said some stupid things over the past 8 years...

Courtenay Beth said...

Dawn, I am so grateful you posted this article. What a challenge. When I think of any challenge in people's lives, I think we need to constantly be reminded of how delicate every one's feelings and struggles are. You are strong Erica. Some people have asked me how I deal with some of the struggles i have faced in my life, saying "I could NEVER do that" And I just think, look I didn't sign up for this trial over any others, I don't enjoy this suffering I face daily, but the truth is you can handle a lot more than you think, because when it comes down to it, you either cope, or cease to exist right? You are so strong. I am anxious for you to have children in your home, what celebration there will be then. And what a lucky child to be placed in yours and Jason's care. You are always in my prayers Dawn, I love you... a lot.

Lyndsie said...
This comment has been removed by the author.
Lyndsie said...

This is Lyndsie, I found your blog off of your facebook page.
I just had to thank you for that article. I wish I could have handed this out to my friends and family 6 years ago when we were trying to get pregnant for the first time. I really liked that part that said support them when they stop treatments! People just cannot understand the toll that going through treatments takes on you!!! In fact when we were trying to get pregnant with our last baby we didn't even tell our family that we were doing IVF. It was just easier that way. Thanks again for the article. It is something that I am going to keep handy!!!
(By the way that was me that deleted the comment!!! I wanted to fix my spelling!!! :) )

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